How Long?!

So today I received my second infusion of docetaxel as part of the Ibrutinib clinical trial I’m participating in. Since this is a clinical trial there are a lot more blood draws involved both for here at Georgetown as well as for the pharma company. As part of the study the blood work also needs to be drawn at certain times to asssess the changes after I’ve received both the Ibrutinib and the docetaxel. Unfortunately today turned out to be a “long day” and I went in thinking I’d be done by noon.

I arrived at Georgetown at 8:00am and had my initial blood draw taken. I then went downstairs to the Lombardi Clinic to meet with Dr. Pishvaian. Two weeks ago when I met with him my blood work showed my white blood cell count had plummeted and I was given an injection of Neulasta to boost wbc production. Last week when we met I mentioned the neuropathy in my fingers wasn’t improving and he said he would see about reducing the amount of docetaxel I received today.

The plan today was my getting a Neulasta Onpro injector. The Onpro injector is a small device that’s attached to the back of my arm and 27 hours later will automatically inject me with Neulasta so I don’t have to come back here to get it. Dr. P. also cleared it with the pharma company to reduce the docetaxel by 20%.

OK, back to why it was a “long day” – blood draws. They needed to take blood draws after the docetaxel was finished and they needed to do this 1 hour, 2 hours and 5.5 hours after I was done which meant I didn’t get done until 5:00pm.  Eesh!

Oh and as far as expletives go… taxel based chemotherapy drugs are the ones that make you lose your hair. Now those of you who know me know I don’t mind going around with a “high and tight” (uber short) hair cut. So I was already prepared to wind up shaving the dome. What I wasn’t prepared for was waking up this morning wondering why I had patches missing from my beard. ARGH! Oh the horror.

Just so you recognize me the next we meet…

2017-11-14T20:57:10+00:00 November 14th, 2017|Categories: Cancer, Cancer Update, Timeline|4 Comments

4 Comments

  1. Keren November 14, 2017 at 9:59 pm - Reply

    You look beautiful to me! Hope Robin can enjoy the smooth kisses for now.

  2. Sherry November 15, 2017 at 3:02 am - Reply

    This stuff just ain’t fun no matter what! Great disguise though, and lovely smile. Prayers and blessings. God is good, all the time.

  3. Kathleen Judson November 15, 2017 at 4:50 am - Reply

    Looking forward to seeing you in person!!!

  4. Steve O'Grady November 15, 2017 at 10:51 pm - Reply

    Your faith, candor and attitude inspire myself and others. Sock cap, long handles and mittens felt good to me. You look great my friend but knowing you don’t feel that way. My prayers for your treatment woes to be solved and your health restored.

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