I met with Dr. Pishvaian this morning to discuss a new treatment plan. It’s another clinical trial, this time using a combination of a known chemotherapy drug – Paclitaxel and a drug called Ibrutinib which is a “kinase inhibitor”. According to the information I was provided, “Kinases are proteins inside cells that help cells live and grow. By blocking a particular type of kinase it is possible that ibrutinib may kill the cancer cells to stop them from growing.”
The treatment plan is a bit more rigorous, requiring me to go to Georgetown every Tuesday. Every week I’ll receive the Ibrutinib as a pill and then every 3 weeks I’ll get the Paclitaxel as an infusion. Because the chemo is only once every 3 weeks the dose is higher. Dr. Pishvaian has already given me the heads up that the chemo is going to be a bit rougher this time around. Upside, as he said, is I’ll have 2 good weeks before the next treatment.
Please pray for my being able to shoulder thru this treatment. Simply reading about some of the side effects has been challenging today. As I complained to my wife yesterday I’ve finally hit the point in all of this where I’m sick of being sick and I’m tired of being tired. I haven’t sprung back from this last surgery like I have in the past and it’s honestly gotten me angry as well as down.
In recognizing where I am physically and emotionally I couldn’t help but think of some very dear friends of mine who have suffered from fibromyalgia for a very long time. I know they often times suffer just getting thru the next hour and I also know there are times they’d love nothing more than to give up – but they don’t. The fact they’ve been dealing with this for decades now absolutely floors me. If nothing else this past year has certainly raised my empathy level for people who suffer from a chronic ailment.
Ladies – I don’t know how you do it, but you are truly warriors. I pray I have the same tenacity over the next few months you’ve had over all these years.