Tears of Joy

And tears of sorrow…

I’m back up in “my” infusion chair at 5 North after meeting with both Dr. Pishvaian and Christina Urso. While the meeting was better than could be imagined I haven’t felt this emotional over of my cancer in a very long time. As I get ready to write this post the reason sounds silly and yet it is none the less very real. Our meeting was about my not needing to come back after the next treatment. No one is still sure what the protocol is supposed to be for the follow-up CT Scans which will be used to make sure the cancer hasn’t returned, because no one on this study at Georgetown has had the kind of response I’ve had nor gotten this far in their treatments.

I asked if I’ll need to stay on the blood thinner Xarelto and Dr. P commented that once cancer has metastasized they recommend the patient stay on a blood thinner for the rest of their life. I then asked but what do you do when the patient is NED’s – and can I use that term?

Christina and I both looked at him expectantly.

“Yes we can use the term NED (No Evidence of Disease), but I don’t have patients that I can normally say that about”, replied Dr. Pishvaian and then almost as if he were talking to himself continued, “Well I guess if you had been on chemo and then had surgery that had removed the cancer I guess you wouldn’t need to remain on a blood thinner. I’ll have to ask Dr. xxxx… about it – I’m not sure.”

I don’t have patients that get to that stage….” I felt so sorry for him, that he doesn’t normally have patients who are ever cancer free. That he has to ask another oncologist what to do with me. I felt sad for him as he was saying this, yet he’s giddy because he rarely has this conversation.

I then mentioned that I’ll still need to come by and have my mediport flushed once a month to which he replied, “Why? We’ll just remove it.”

“Well shouldn’t I keep it in at least until after the first few scans?”

“No, it’s a possible point for infection besides we can always put it back in if we need it again.”

Then what else is there for me? Just the CT Scans, and what do I do with every other Monday? As I made my way back upstairs I found myself getting every emotional as I processed these questions.

One more treatment to go after today and I’m a free man.

[blockquote align=”center” variation=”mossgreen”]Dr. Pishvaian shared how he recently saw a graph used at a cancer symposium by MedImmune. One of the lines on the chart did a quick decline and then stayed steady at the bottom of the graph. The doc chuckled when he saw it knowing that line represented me. I’ve become the anecdotal story for the positive effects of MEDI4736.[/blockquote]

(Added at 3:00PM) I caught Dr. Ion Cotarla upstairs and cornered him while he was at a computer. He’d heard from Dr. P. asking about the protocol so looked it up for me. It even took him a little bit to find the spread sheet showing what the protocol expects after the treatment. I get to have another CT Scan (a little sooner than expected) then I go back in at 1 month and again at month 3 for blood work. CT Scans every 2 months for the rest of the year. After that I may only be under the care of Dr. P and he said he’d want to do a scan every 3 months.

2014-09-22T15:06:45-04:00 September 22nd, 2014|Categories: Cancer Update|9 Comments

9 Comments

  1. Erik & Laurie September 22, 2014 at 11:23 am

    Rejoicing with you. And praying for God’s abundant grace to surround and uphold you as you live out this miracle with awe and wonder. So thankful that you have shared this journey with us.

    • Michael Kenney September 22, 2014 at 11:27 am

      Awe and wonder over what God would have me do now mixed with fear and apprehension that I properly discern His will.

  2. Kris K September 22, 2014 at 3:46 pm

    Truly amazing. I’m very happy for you and Robin. And for others like me who like having you around.

    • Diane September 23, 2014 at 7:00 am

      Glory be to our Mighty and Merciful God who still has work for you to do for His Kingdom here on earth for awhile!
      Thanking Him with you, Mike! (and Robin)

  3. Sherry September 23, 2014 at 7:53 pm

    I’m in tears as I read his. I guess I sort of assumed many of the patients in the study were responding as well as you did. What that tells me is, it’s totally a God thing (back to that prayer at the prayer service). Praise The Lord! He’s got more work for you to do! Get ready, cause I think we’re all in for a WILD RIDE!

  4. Rose Blondell September 23, 2014 at 7:57 pm

    Thrilled and humbled with your post. You should know how much you mean to all of us. Blessings to you.

  5. Joyce Coffin September 23, 2014 at 8:14 pm

    Dear Mike, I too am in tears. I’m having my own little praise service as I sit in front of the computer What a faithful God we serve. He doesn’t waste our sorrows. He is able to do exceedingly abundantly beyond all we can ask or even think according to the power that dwells within us. Can’t wait to read the “rest of the story!” Love to you and Robin, Love in Christ, Joyce Coffin Larry is at his bible study. Can’t wait to tell him!

  6. Ann Marie Railing September 23, 2014 at 9:40 pm

    This is the day The Lord has made, let us rejoice and be glad in it! I’m so happy for you and for Robin. Yes, Medimmune did wonders, but my vote is on the group therapy of prayers!!! Love you!!!!

  7. Karen Becker October 3, 2014 at 11:00 am

    Such wonderful news! I am so happy for you!

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