Note: This all came to light on Thursday and I’m just now writing this post Saturday morning Feb. 3. I’ve sent most of this post out in emails to friends, family and my church but I know a lot of you read my blog updates from the Facebook posts so i needed to still get this out.
Sorry for the crass subject line but that was the phrase that kept running through my head as I walked across the parking lot to my car after leaving my primary care physician. I went to see Dr. Tweedt because my left shoulder has been killing me the past week. I thought it might be a stress/hairline fracture in my collar bone. I haven’t fallen or anything but I figured with everything else fun going on with me maybe my bones have gotten brittle from the drugs or something. After a quick examination Dr. Tweedt sent me over to have x-rays taken and asked me to then come back and see her for the results. I’m amazed, I was able to call in this morning and get all this taken care of this afternoon. Well, I was right. I have a fracture in the left clavicle. Unfortunately it’s not from stress but from the cancer metastasizing.
Dr. Tweedt sent the findings to Dr. Pishvaian so he’ll have them when I see him this coming Tuesday. I also made an appointment with an orthopedic surgeon next Wednesday but no idea if there is anything they can do for me. Thankfully the bone hasn’t broken all the way through and I still have a full range of motion, but my shoulder is constantly throbbing. Praise God for opioids and no I’m not joking – well maybe just a little. 🙂
My wife, Robin is going to drive me down to Georgetown for next weeks appointment as I need to start taking pain meds around the clock now and won’t be able to drive. So what can you pray for? A miracle would be most gratefully appreciated – yes that’s a joke – no it’s not. 🙂
Seriously though… Robin commented to me after we talked that she needs to get a mobile hotspot because the Wi-Fi at Georgetown might as well be non-existent. I said she needed to get something for at least a few months. To which she questioned, “A few months? Are you checking out?”
Well I have to admit that question brought on more than a few tears, as even now thinking about it is doing so again.
My answer was and still is is “No”. I’m trying my damnedest not to check out, but this latest news feels like another nail in my coffins lid. You can certainly pray I’ll stay as upbeat as possible.
It’s one thing to be a physical burden, I don’t want to add more to the emotional side of the equation if I can help it.
When I saw Dr. Pishvaian back on Jan. 23 I mentioned to him about my shoulder pain. At the time he dismissed it as being nerve pain from my Pluerx catheter. Yesterday I sent him an email about Thursdays findings. He must have felt a little guilty for not having paid more attention to what I said the week before as this email was waiting for me when I got up this morning.
I didn’t want to leave you hanging on this, and we can talk more on Tuesday, but…..
1) Went back and looked at the CT scan from Mid-January and the fracture was already present then…..very subtle. Had to look hard to find it.
2) We are pretty sure that calithera will allow us to offer you radiation to the clavicle for symptomatic relief WHILE continuing on the pills – hope to have confirmation of that before Tuesday.
If yes, then I will set you up with the radiation oncologist ASAP
Michael J. Pishvaian, MD, PhD
Phase I Program Director
Lombardi Comprehensive Cancer Center
Sounds like we’re on to the next adventure on this journey. Thanks for sticking with me and for all your prayers and well wishes.