Morning all. I just wanted to let everyone know where I’m at these days. As you know I’m under hospice care right now. Their main focus is to make sure I’m not in any pain. So far it’s been manageable, especially now that I’m hooked up (via mediport IV) to a pain pump with dilaudid. I get X amount of dilaudid every hour and then I have a button I can hit to give me a bolus injection if the pain gets to be too much. I’m afraid the left lung has pleural effusion again. Between that and my laryngeal paralysis I’m down to talking in a whiny whisper these days. I also run out of breath and therefore energy very quickly.
Which brings up the other reason for this update and that’s too touch on visits. I know there are a few of you who would still like to try and come by to see me. As much as I’d love to see you I just want to make sure you understand my physical limitations. 15 – 30 minutes really is about it these days before you’ll see my eyes closing. I’m not falling asleep so much as trying to recoup my energy. Visits are plain tough because I so want to participate and talk and tell you I’m doing better than expected at this time. Unfortunately I don’t have the voice any longer to do so.
So, with that all said. If you would like to come by the best bet is to call and simply see if I’m up for it. From one day to the next I have no idea how I will be. Yesterday at this time I was not up to seeing anyone but today is, so far, going much better. But, please don’t feel obligated to stop by. Facebook is helping me keep up with y’all and a quick message through that outlet can suffice.
I love you all very much.